Trudie Lobban MBE, FRCP Edin, established STARS (Syncope Trust And Reflex Anoxic Seizures), following the diagnosis of her daughter with RAS and at the request of her pediatric neurologist in 1993. STARS has developed into an international non-profit organization She was instrumental in changing government policy in the UK for arrhythmias and sudden cardiac death in 2004/5.
Trudie went on to establish the Arrhythmia Alliance working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias. A-A is a coalition of charities, patient groups, patients, carers, medical groups, health care professionals, policy makers and politicians. She also established AF Association globally in 2007. Trudie is recognized worldwide as a patient expert on syncope and unexplained loss of consciousness, arrhythmias and AF; presenting at international medical meetings.